Standing Up Without Fear of Standing Out
10 min read
Annemarie, Jade, and Talya have learned to stand up for themselves in different aspects of life with type 1 Gaucher disease. They don’t hesitate to speak up, and ask for support when they need it.
My Journey to 3 Healthy Habits
9 min read
Jade has learned many lessons along her journey, and she’s sharing them with us today. Here are 5 practical tips that we hope you find useful.
Seeing the World While Watching My Health
9 min read
Talya has some tricks to help manage Gaucher while traveling. Take a look at 5 practical tips inspired by Talya’s experience.
journey
The Gaucher Community Alliance (GCA) provides emotional support, information, and patient and family resources for anyone affected by Gaucher disease.
gauchercommunity.orgThe National Organization for Rare Disorders (NORD) aims to support patients with rare diseases through educational, advocacy, and research programs.
rarediseases.orgThe National Gaucher Foundation (NGF) helps patients with Gaucher disease and their families through financial support, educational resources, and research.
gaucherdisease.orgMore inspiration IS on the way
Visit us often to find new resources and stories we hope you’ll find useful and inspiring.
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